Fibro Colors is a Fibromyalgia Community Awareness page dedicated to Encouraging, Empowering and Educating through informational posts,
inspirational stories and every day questions when dealing with Fibromyalgia.
1. People with chronic pain seem unreliable (we can’t count on
ourselves). When feeling better we promise things (and mean it); when in
serious pain, we may not even show up.
2. An action or
situation may result in pain several hours later, or even the next day.
Delayed pain is confusing to people who have never experienced it.
3. Pain can inhibit listening and other communication skills. It’s like
having someone shouting at you, or trying to talk with a fire alarm
going off in the room. The effect of pain on the mind can seem like
attention deficit disorder. So you may have to repeat a request, or
write things down for a person with chronic pain. Don’t take it
personally, or think that they are stupid.
4. The senses can overload while in pain. For example, noises that wouldn’t normally bother you, seem too much.
5. Patience may seem short. We can’t wait in a long line; can’t wait for a long drawn out conversation.
6. Don’t always ask “how are you” unless you are genuinely prepared to listen it just points attention inward.
7. Pain can sometimes trigger psychological disabilities (usually very
temporary). When in pain, a small task, like hanging out the laundry,
can seem like a huge wall, too high to climb over. An hour later the
same job may be quite OK. It is sane to be depressed occasionally when
8. Pain can come on fairly quickly and unexpectedly. Pain
sometimes abates after a short rest. Chronic pain people appear to
arrive and fade unpredictably to others.
9. Knowing where a refuge
is, such as a couch, a bed, or comfortable chair, is as important as
knowing where a bathroom is. A visit is much more enjoyable if the
chronic pain person knows there is a refuge if needed. A person with
chronic pain may not want to go anywhere that has no refuge (e.g.no
place to sit or lie down).
10. Small acts of kindness can seem like
huge acts of mercy to a person in pain. Your offer of a pillow or a cup
of tea can be a really big thing to a person who is feeling temporarily
helpless in the face of encroaching pain.
11. Not all pain is easy
to locate or describe. Sometimes there is a body-wide feeling of
discomfort, with hard to describe pains in the entire back, or in both
legs, but not in one particular spot you can point to. Our vocabulary
for pain is very limited, compared to the body’s ability to feel
varieties of discomfort.
12. We may not have a good “reason” for the
pain. Medical science is still limited in its understanding of pain.
Many people have pain that is not yet classified by doctors as an
officially recognized “disease”. That does not reduce the pain, – it
only reduces our ability to give it a label, and to have you believe us.